Foundation News

SAVE THE DATE: 2nd Annual Chris Carrino Foundation Dinner/Dance

Be sure to mark your calendars now!  Our second annual dinner dance will be taking place on Thursday, July 19, 2012 at Russo’s on the Bay in Howard Beach, NY.  If you couldn’t make it to our event last year, here’s what you missed:  First Annual Chris Carrino Foundation Dinner/Dance Stay tuned to our site for upcoming event ticket information. Hope to see you there!

PRESS RELEASE: The Chris Carrino Foundation for FSHD Extends Funding of Genetic Research Project

September 19, 2011 Massapequa Park, New York The Chris Carrino Foundation for FSHD announced the extension of a scientific research project directed towards understanding the genetic basis of variable severity in FSHD (Facioscapulohumeral Muscular Dystrophy). The study, entitled, “Uncovering the Genetic Basis of Variable Severity in FSHD” is headed by Dr. Eli Hatchwell, formerly Director of the Genomics Core Facility at the State University of New York at Stony Brook, and currently Chief Scientific Officer of Population Diagnostics and Adjunct Associate Professor at Stony Brook. Dr. Hatchwell received his medical degree from Cambridge University and his PhD from Oxford University. He has previously worked on autism and congenital heart disease and is a welcome addition to the FSHD field. Dr. David Tegay, an Associate Professor of Internal Medicine and Medical Genetics, at the New York Institute of Technology’s College of Osteopathic Medicine (NYCOM), is a Co-Investigator on this study. “We’re excited to extend this significant project and look forward to the advances in FSHD genetic research in the near future,” stated Jennifer Burgess, Co-Chair of The Chris Carrino Foundation for … Continue reading

The Chris Carrino Foundation for FSHD Inaugural Dinner Dance (Photos & Video)

View Photos of our Event:  Foundation Inaugural Dinner Dance Photos View Video Footage of Our Event: Foundation Inaugural Dinner Dance Video The Chris Carrino Foundation for FSHD Inaugural Dinner Dance Thursday, August 18, 2011 Russo’s on the Bay 162-45 Cross Bay Blvd Howard Beach, NY 11414 Cocktail hour at 6:00 pm Followed by Dinner at 7:00pm Top shelf open bar all night DJ, Dancing, Live auction and Raffle prizes Thanks to our Platinum level sponsors: The Chris Carrino Foundation for FSHD is a 501(c)3 charity dedicated to eradicating the life altering effects of facioscapulohumeral muscular dystrophy.

STORY: NBA Announcer Chris Carrino: My Battle Against FSHD Muscular Dystrophy

Yahoo! Sports | The Post Game. Friday, May 27, 2011 4:11 pm Written by: Chris Carrino One of my earliest broadcasting memories is calling the World Series in 1980. It wasn’t for any network, just my tape recorder, while watching it on the TV in my parents’ bedroom. I was 10 years old. No one ever heard it but me.In June 2002, at the Staples Center in Los Angeles, I called my first NBA Finals game on WOR radio in New York. I’m fairly certain a few more people heard that broadcast. Somewhere in between, I was diagnosed with fascio scapulo humeral dystrophy or FSHD for short, a form of muscular dystrophy. FSHD is a thief in the night, slowly robbing you of your ability to use your arms and legs and even to smile the way you want to. I was born with it, but didn’t know it until my college years. That’s when I started to lose some of the athleticism I had always enjoyed. My running was slowed to a fast walk, shooting a basketball felt like … Continue reading

AUDIO: Chris Carrino Brings Awareness on the Boomer & Carton Morning Show

Chris Carrino appeared on the Boomer and Carton morning show on WFAN, Tuesday, May 3. Listen to the full interview: Boomer & Carton talk with Chris Carrino

AUDIO: Bob Salter Interviews Chris Carrino on WFAN

An in depth interview with Chris conducted by Bob Salter, which aired on WFAN on Sunday morning, April 17th. Listen to the full interview: Bob Salter speaks with Chris Carrino

ESPN.com: Chris Carrino talks about life with MD

Updated: April 13, 2011 Associated Press NEWARK, N.J. — New Jersey Nets radio voice Chris Carrino has been living with a secret for almost two decades. The 40-year-old, who has spent the past decade describing the franchise’s run at NBA titles early in the decade to the misery of recent losing seasons, has done it with his body being gradually attacked by a form of muscular dystrophy. Carrino has facioscapulohumeral dystrophy, one of nine types of MD, and this one has neither a treatment nor a cure. “I have always been reluctant to talk about it because I never wanted to seem different,” Carrino said. “I never wanted to be treated differently. It took me a while to talk to the people, even friends. It’s something I felt that as long as I could get away with people not knowing, it would be fine.” Carrino is doing more than talking these days about his debilitating disease. He has launched the Chris Carrino Foundation for FSHD. Read the full article at ESPN.com.

Star-Ledger Article: D’Alessandro: Battling muscular dystrophy, Nets radio voice Chris Carrino makes the biggest call of his life

By Dave D’Alessandro/Star-Ledger Columnist Published: Tuesday, April 12, 2011 The first time he was aware that something was wrong was when he was in his late teens, and being someone who doesn’t complain about anything — that should be on his business card, by the way — Chris Carrino decided to keep it to himself. It wasn’t any one incident, it was just a series of gradual, insidious signals of a disease’s awakening: One day the basketball would feel like a 5-pound weight; another day the easy burst from the batter’s box to first base would turn into a laborious jog in deep sand. When they finally told him it was muscular dystrophy that had suddenly taken control of his body, Carrino was 23 years old. Being Carrino — and again, this is why everyone regards him as special — his initial response was, “Well, at least it’s not something life-threatening.” But reality, cruel as it often is, intervenes. He’s lived with this horrid disease — facioscapulohumeral muscular dystrophy, or FSHD, the most common form of MD — for nearly … Continue reading

Press Release: “Voice of the NETS” Chris Carrino Reveals Struggle with FSHD

April 8, 2011 EAST RUTHERFORD, N.J.—Chris Carrino, the radio voice of Nets Basketball for the last decade, has revealed publicly for the first time that he suffers from Facioscapulohumeral Dystrophy (FSHD), a form of muscular dystrophy. In an effort to raise money for this underfunded disease, Carrino, 40, has launched The Chris Carrino Foundation for FSHD. Read full press release here.