Carmel Running Club’s 5K

Sunday, October 10, 2010 Putnam County Veterans Memorial Park Carmel, New York

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Evening of Music

Thank you Thomas Moran and Friends for a terrific evening of music at Massapequa Perk Coffee House!

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Finally Some Hope

A fundraiser presented by the family & friends of Jimmy Burrows. Saturday, August 21, 2010 4pm to 8pm Mulcahy’s in Wantagh, New York    

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Hofstra v. Adelphi Soccer Clinic Fundraiser 2010

The 2010 Hofstra v. Adelphi Soccer Clinic Fundraiser game was a huge success!

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LIFSHD Foundation Funds Research Project to Find FSHD Gene

April 5, 2010 Massapequa Park, New York LIFSHD Foundation Funds Research Project to Find FSHD Gene. Project Headed by Dr. Eli Hatchwell, Director of the Genomics Core Facility and Associate Professor at SUNY Stony Brook Long Island FSHD Foundation announced the funding of a new scientific research project to find the elusive gene that is linked to FSHD (Facioscapulohumeral Muscular Dystrophy). The study, entitled, “Novel Approaches to Finding the FSHD Gene,” will be headed by Dr. Eli Hatchwell, Director of the Genomics Core Facility and Associate Professor at the State University of New York at Stony Brook. Dr. Hatchwell received his medical degree from Cambridge University and his PhD from Oxford University. He has done work with Autism and Congenital Heart disease and is a welcomed attribute to the FSHD field. “We are thrilled that Dr. Hatchwell is eager to embark on FSHD genetic research and embrace the complexities and challenges of the FSHD genetic puzzle,” stated Jennifer Burgess Valentine, Founder/Executive Director of Long Island FSHD Foundation. FSHD patients interested in donating samples for the study are asked to contact … Continue reading

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SOCCER EXCITEMENT!

Spring Soccer Clinic Fundraiser followed by Hofstra v. Adelphi Men’s Game April 10, 2010 John J. Burn’s Park Massapequa

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Dinner Gala

Our Dinner Gala was a huge success.  Thank you for your support!

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