SAVE THE DATE: 2nd Annual Chris Carrino Foundation Dinner/Dance
Be sure to mark your calendars now! Our second annual dinner dance will be taking place on Thursday, July 19, 2012 at Russo’s on the Bay in Howard Beach, NY. If you couldn’t make it to our event last year, here’s what you missed: First Annual Chris Carrino Foundation Dinner/Dance Stay tuned to our site for upcoming event ticket information. Hope to see you there!
Would You Like to Help Us Raise Donations for FSHD Research?
The Chris Carrino Foundation for FSHD recently created a fundraising page through FirstGiving.com. FirstGiving offers tools and expertise to connect with friends and family and make fundraising less overwhelming – and even fun. Easy to use online tools for creating a personalized fundraising page in just minutes, allowing you to meet and exceed your fundraising goals. A page with your own unique web address allows you to tell your personal story of fundraising, encouraging donors to be engaged in your cause. Online tools that make it simple to leverage your networks, including the use of tools such as email, Facebook, Twitter, and your own blog. A means to raise awareness about important issues and raise money in a fun and engaging way. Does this cost anything? Your FirstGiving page is free. FirstGiving sends all donations directly and securely to the Chris Carrino Foundation donation page, where we will pay a nominal fee for using their service. Is this site secure? 100%! Keeping your information safe from identity theft and internet fraud is FirstGiving’s priority. FirstGiving is VeriSign secured and PCI … Continue reading
VOLUNTEERS NEEDED FOR FSHD RESEARCH
The Chris Carrino Foundation for FSHD, together with researchers at State University of New York at Stony Brook and the New York Institute of Technology’s College of Osteopathic Medicine, is seeking volunteers for a collaborative research study into genetic factors determining FSHD severity. FSHD severity varies significantly, even within families sharing the same common genetic mechanism, implicating other potential genetic “modifier” factors, which this study aims to uncover. Uncovering these factors could improve understanding of the disease and, ultimately, help in the search for novel treatments. This study is open to recruitment for individuals with FSHD who are over 18 years of age. There is no cost for participation and an on-site visit is not required. Interested individuals will be mailed a saliva sample collection kit together with a health questionnaire and permission to review relevant medical records upon enrollment. For further information or enrollment please contact Jennifer Burgess at JenniferBurgess@chriscarrinofoundation.org or the principal investigator, Dr. David Tegay, at (516) 686-3897, or by e-mail at dtegay@nyit.edu.
PRESS RELEASE: The Chris Carrino Foundation for FSHD Extends Funding of Genetic Research Project
September 19, 2011 Massapequa Park, New York The Chris Carrino Foundation for FSHD announced the extension of a scientific research project directed towards understanding the genetic basis of variable severity in FSHD (Facioscapulohumeral Muscular Dystrophy). The study, entitled, “Uncovering the Genetic Basis of Variable Severity in FSHD” is headed by Dr. Eli Hatchwell, formerly Director of the Genomics Core Facility at the State University of New York at Stony Brook, and currently Chief Scientific Officer of Population Diagnostics and Adjunct Associate Professor at Stony Brook. Dr. Hatchwell received his medical degree from Cambridge University and his PhD from Oxford University. He has previously worked on autism and congenital heart disease and is a welcome addition to the FSHD field. Dr. David Tegay, an Associate Professor of Internal Medicine and Medical Genetics, at the New York Institute of Technology’s College of Osteopathic Medicine (NYCOM), is a Co-Investigator on this study. “We’re excited to extend this significant project and look forward to the advances in FSHD genetic research in the near future,” stated Jennifer Burgess, Co-Chair of The Chris Carrino Foundation for … Continue reading
The Chris Carrino Foundation for FSHD Inaugural Dinner Dance (Photos & Video)
View Photos of our Event: Foundation Inaugural Dinner Dance Photos View Video Footage of Our Event: Foundation Inaugural Dinner Dance Video The Chris Carrino Foundation for FSHD Inaugural Dinner Dance Thursday, August 18, 2011 Russo’s on the Bay
STORY: NBA Announcer Chris Carrino: My Battle Against FSHD Muscular Dystrophy
Yahoo! Sports | The Post Game. Friday, May 27, 2011 4:11 pm Written by: Chris Carrino One of my earliest broadcasting memories is calling the World Series in 1980. It wasn’t for any network, just my tape recorder, while watching it on the TV in my parents’ bedroom. I was 10 years old. No one ever heard it but me.
AUDIO: Chris Carrino Brings Awareness on the Boomer & Carton Morning Show
Chris Carrino appeared on the Boomer and Carton morning show on WFAN, Tuesday, May 3. Listen to the full interview: Boomer & Carton talk with Chris Carrino
AUDIO: Bob Salter Interviews Chris Carrino on WFAN
An in depth interview with Chris conducted by Bob Salter, which aired on WFAN on Sunday morning, April 17th. Listen to the full interview: Bob Salter speaks with Chris Carrino
ESPN.com: Chris Carrino talks about life with MD
Updated: April 13, 2011 Associated Press NEWARK, N.J. — New Jersey Nets radio voice Chris Carrino has been living with a secret for almost two decades. The 40-year-old, who has spent the past decade describing the franchise’s run at NBA titles early in the decade to the misery of recent losing seasons, has done it with his body being gradually attacked by a form of muscular dystrophy.
Star-Ledger Article: D’Alessandro: Battling muscular dystrophy, Nets radio voice Chris Carrino makes the biggest call of his life
By Dave D’Alessandro/Star-Ledger Columnist Published: Tuesday, April 12, 2011 The first time he was aware that something was wrong was when he was in his late teens, and being someone who doesn’t complain about anything — that should be on his business card, by the way — Chris Carrino decided to keep it to himself.
Press Release: “Voice of the NETS” Chris Carrino Reveals Struggle with FSHD
April 8, 2011 EAST RUTHERFORD, N.J.—Chris Carrino, the radio voice of Nets Basketball for the last decade, has revealed publicly for the first time that he suffers from Facioscapulohumeral Dystrophy (FSHD), a form of muscular dystrophy. In an effort to raise money for this underfunded disease, Carrino, 40, has launched The Chris Carrino Foundation for FSHD. Read full press release here.
NYT Article: “Reanimated ‘Junk’ DNA Is Found to Cause Disease”
By GINA KOLATA Published: August 19, 2010 The human genome is riddled with dead genes, fossils of a sort, dating back hundreds of thousands of years — the genome’s equivalent of an attic full of broken and useless junk. Some of those genes, surprised geneticists reported Thursday, can rise from the dead like zombies, waking up to cause one of the most common forms of muscular dystrophy. This is the first time, geneticists say, that they have seen a dead gene come back to life and cause a disease.
Neurology Today Article: New Report Identifies Pathogen for Fascioscapulohumeral Dystrophy
By: Tom Valeo Published: September 16, 2010 – Volume 10 – Issue 18 – p 15 Nearly 20 years after the discovery of the mutation, scientists have finally determined how it contributes to a common form of muscular dystrophy known as facioscapulohumeral dystrophy, or FSHD, which occurs in about 1 in 20,000 births.
