The links below will lead you to a number of resources that are focused on FSHD research:

LIFSHD Foundation Funds Research Project to Find FSHD Gene

Fields FSHD and Neuromuscular Research Center

• University of Rochester and Leiden University

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center at:

• University of Rochester
• University of Washington
• University of Iowa

Additional FSHD Resources

• FSH Friends

• FSHD Global Research Foundation

• FSH Society

• Muscular Dystrophy Association