My name is Chris Carrino. I am a sports play-by-play announcer, both nationally and in the New York metropolitan area.
I am a husband and a father.
And I suffer from Facio Scapulo Humeral Dystrophy or FSHD, a form of Muscular Dystrophy affecting thousands of adults and children worldwide.
I first started to feel the effects of this disease when I was in college and was finally diagnosed in my early twenties. I know what it’s like to hear a doctor tell you that you suffer from a progressive, debilitating disease with no proven treatment options and no cure. From that point on, your life is never the same.
But I was determined to continue on the path I set forth. I had dreams of a career in sports broadcasting and dreams of having a family. I was determined not to let FSHD get in the way of those dreams.
Always reluctant to be treated or viewed differently, I kept my condition on a need to know basis. It was my way of coping with it, until now.
From the beginning, the plan was always to make something of myself and then try to help others. But the time never seemed to be right.
It was my wife Laura, my rock, the person who inspires me every day to be a better man, who finally convinced me that it was time. That’s when I really began to investigate what was out there in the world of FSHD. That’s when I met Jennifer Burgess, a devoted mother and tireless worker trying to help cure FSHD through her Long Island Foundation. It was Jennifer who suggested we join forces and form the Chris Carrino Foundation for FSHD.
Together, our mission is to promote awareness, provide hope and inspiration, and ultimately find a treatment and a cure for those suffering from FSHD.
In recent years there have been some exciting scientific breakthroughs in regards to FSHD, but much work remains. I encourage you to browse this site and learn more about the remarkable things being accomplished by those dealing with FSHD and those trying to help.
For years I have been a voice for some of the greatest athletes in the world. Now I hope to be a voice for those whose courage far exceeds their physical strength, a voice for FSHD.